Recent media coverage featuring two young New Zealanders, Carrie Kunicich and Flynn Mitchell, has brought valuable public attention to Friedreich's Ataxia. Their experiences underscore the importance of specialised medical care, community-led fundraising, and the ongoing drive for research.
Read MoreAn absolutely incredible final total! Lend Us Some Muscle™ 2025 has raised a spectacular $46,941.93 for Friedreich's Ataxia research in NZ! A massive, heartfelt thank you to our entire community. Read our final wrap-up and see how you can get involved next year...
Read MoreWOW! LUSM 2025 has raised an incredible $30,731.82 for FA research! A huge thank you to all our amazing fundraisers. There are still a few days left in May to donate and boost this fantastic total. Read more & support them here...
Read MoreIncredible LUSM 2025 update! Over $23,733 raised for FA research by amazing Kiwis! Get inspired by their challenges – from half-marathons to group walks – and see how you can still lend your support or sign up for the final stretch of May...
Read MoreWOW! We've hit over $17.2k in our Lend Us Some Muscle™ 2025 campaign for Friedreich's Ataxia! A huge thanks to our fundraisers. See the progress, how you can still get involved, or support them this May...
Read MoreLend Us Some Muscle™ 2025 starts in just a few days! Haven't signed up yet? There's still time to join the May challenge and help fund crucial Friedreich's Ataxia research. Click here to register quickly before it kicks off!
Read MoreRegistrations are NOW OPEN for Lend Us Some Muscle™ 2025! Get ready to flex this May, have fun, and help raise vital funds for Friedreich's Ataxia research. Find out how to join the movement and sign up for free today...
Read MoreWith International Ataxia Awareness Day around the corner, watch the fourth and final video in this series by Bill Nye (the Ataxia Advocate guy!)
Read MoreBill Nye explains the science behind Ataxia and the crucial role of research in finding new treatments.
Read MoreFind out about the 'Darby Glide' as Bill Nye shares details on Ataxia in his family.
Read MoreWhat actually is Ataxia? Find out more from Bill Nye the Ataxia Advocate guy!
Read MoreMay means it’s time to LEND US SOME MUSCLE! Sign up, donate, support, and flex!
Find out more here: https://nz.lendussomemuscle.com/lend-us-some-muscle-2024
Read MorePeople living with FA can access physiotherapy & occupational therapy services through the Duncan Foundation. Find out more.
Read MoreLend us some muscle for the month of May!
Find out more here: https://nz.lendussomemuscle.com/lend-us-some-muscle-2023
Read MoreThe Clinical Management Guidelines for Friedreich Ataxia have been updated.
Read MoreManaging FA can be challenging so Connect FA has created a great resource with suggestions from the FA community. Download a copy at https://www.connectfa.com
Read MoreJoin us in saying thank you to everyone who contributed to Lend Us Some Muscle 2022!
Read MoreFARA NZ’s chairperson, Dianne Boon, recently wrote an article for InTouch magazine. The article includes an update about the work being done by FARA NZ and puts the spotlight on the shiny new FA App (available in App Store & Google Play store)
Read Morefara Australia invites FA patients and families to attend the 2022 FA Patient and Family Information Forum
Read MoreOur friends at fara Australia have secured the exclusive screening of The Ataxian through the generous people at Classic and Lido Cinemas. Available online and all proceeds go to FA research.
The award-winning documentary spotlights Kyle Bryant, a man living with the progressive genetic neuromuscular disorder, Friedreich Ataxia, and a team of friends, as they attempt the most gruelling bicycle race in the world, The Race Across America. Watch online now!
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