Provided by specialists, these guides offer specific exercise advice for people with FA and their trainers, as well as broader guidelines for inherited ataxia. Find out more and download the printable PDFs.
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Missed the 2025 Friedreich Ataxia Information Forum or want to re-watch the presentations? Watch the full recording to hear from leading New Zealand researchers on the latest updates in FA clinical trials, hearing research, and vision-related quality of life. Access the full video and session highlights inside
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Recent media coverage featuring two young New Zealanders, Carrie Kunicich and Flynn Mitchell, has brought valuable public attention to Friedreich's Ataxia. Their experiences underscore the importance of specialised medical care, community-led fundraising, and the ongoing drive for research.
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An absolutely incredible final total! Lend Us Some Muscle™ 2025 has raised a spectacular $46,941.93 for Friedreich's Ataxia research in NZ! A massive, heartfelt thank you to our entire community. Read our final wrap-up and see how you can get involved next year...
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WOW! LUSM 2025 has raised an incredible $30,731.82 for FA research! A huge thank you to all our amazing fundraisers. There are still a few days left in May to donate and boost this fantastic total. Read more & support them here...
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Incredible LUSM 2025 update! Over $23,733 raised for FA research by amazing Kiwis! Get inspired by their challenges – from half-marathons to group walks – and see how you can still lend your support or sign up for the final stretch of May...
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WOW! We've hit over $17.2k in our Lend Us Some Muscle™ 2025 campaign for Friedreich's Ataxia! A huge thanks to our fundraisers. See the progress, how you can still get involved, or support them this May...
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Lend Us Some Muscle™ 2025 starts in just a few days! Haven't signed up yet? There's still time to join the May challenge and help fund crucial Friedreich's Ataxia research. Click here to register quickly before it kicks off!
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Registrations are NOW OPEN for Lend Us Some Muscle™ 2025! Get ready to flex this May, have fun, and help raise vital funds for Friedreich's Ataxia research. Find out how to join the movement and sign up for free today...
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With International Ataxia Awareness Day around the corner, watch the fourth and final video in this series by Bill Nye (the Ataxia Advocate guy!)
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Bill Nye explains the science behind Ataxia and the crucial role of research in finding new treatments.
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Find out about the 'Darby Glide' as Bill Nye shares details on Ataxia in his family.
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What actually is Ataxia? Find out more from Bill Nye the Ataxia Advocate guy!
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May means it’s time to LEND US SOME MUSCLE! Sign up, donate, support, and flex!
Find out more here: https://nz.lendussomemuscle.com/lend-us-some-muscle-2024
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People living with FA can access physiotherapy & occupational therapy services through the Duncan Foundation. Find out more.
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Lend us some muscle for the month of May!
Find out more here: https://nz.lendussomemuscle.com/lend-us-some-muscle-2023
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The Clinical Management Guidelines for Friedreich Ataxia have been updated.
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Managing FA can be challenging so Connect FA has created a great resource with suggestions from the FA community. Download a copy at https://www.connectfa.com
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Join us in saying thank you to everyone who contributed to Lend Us Some Muscle 2022!
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FARA NZ’s chairperson, Dianne Boon, recently wrote an article for InTouch magazine. The article includes an update about the work being done by FARA NZ and puts the spotlight on the shiny new FA App (available in App Store & Google Play store)
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