We were privileged to be joined by representatives from University of Auckland’s Neurogenetic Research Clinic at our recent AGM. Take a look at the slides enclosed.
Read MoreFlynn Mitchell and his family are taking part in the RideAtaxia Global Challenge and have a goal of raising $15,000 - they’re just about halfway there!
Read MoreCan you help researchers test a treatment option for Friedreich Ataxia?
If you have FA and can walk at least 3 meters in one minute, then you may qualify to take part. This is an exciting opportunity to play an important role in potentially game changing research!
Read More[ONE TO WATCH] FARA US recently hosted a webinar on the FA Treatment Pipeline. The session included updates on therapeutic approaches in the pipeline with Jen Farmer, FARA's Chief Executive Officer; Dr Barbara Tate, Chief Scientific Officer; and Susan Walther, Director of Patient Engagement.
Read MoreLend Us Some Muscle has a come to a close for another year - and what a huge success it’s been! The support from the New Zealand crowd was fantastic. We salute you!
Read MoreFA Awareness Day is this Saturday 15th May! You can get involved and raise awareness of FA by getting involved in Lend Us Some Muscle - the global campaign dedicated to finding a cure for FA.
Read MoreWe’re excited to announce you can get Lend Us Some Muscle T-Shirts this year! Limited numbers, get in quick!
Read MoreSign the petition for a New Zealand Rare Disease Framework!
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