Who We Are Annual Reports FAQ
What is FA? FA Research Support & Resources
 

Supporting Kiwis with Friedreich Ataxia

We are a volunteer-led charity dedicated to finding a cure.

Learn more about FA
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 Join Our Community

Connect with a supportive community, receive vital information, and help us grow our voice in New Zealand.

Group of people with Friedreich's Ataxia and their families at a FARA NZ community meeting

Meet Joe: A Day in the Life with FA

Joe is just about to celebrate his birthday with his family. Watch now and gain insights and perspective into the challenges and triumphs of living with FA. Video credit to Attitude.

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Your Help Makes a Difference

As a volunteer-led charity, we rely on the dedication of our community. We are always looking for passionate people to help share the operational load and bring new perspectives to our board. Whether you have an hour or a few hours a week, your skills and time are invaluable to the future of FARA NZ.

Group of people with Friedreich's Ataxia and their friends & families at a FARA NZ Lend Us Some Muscle fundraiser

 Your Contribution Changes Lives

Every dollar donated funds critical research and provides direct support to our community. Your contribution, big or small, helps us in our mission.

Latest Blog Posts

Stay up-to-date with our latest news and stories.

Featured
Latest FA Research Updates: Watch the 2025 Information Forum Recording
Latest FA Research Updates: Watch the 2025 Information Forum Recording

Missed the 2025 Friedreich Ataxia Information Forum or want to re-watch the presentations? Watch the full recording to hear from leading New Zealand researchers on the latest updates in FA clinical trials, hearing research, and vision-related quality of life. Access the full video and session highlights inside

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Friedreich's Ataxia in the Spotlight
Friedreich's Ataxia in the Spotlight

Recent media coverage featuring two young New Zealanders, Carrie Kunicich and Flynn Mitchell, has brought valuable public attention to Friedreich's Ataxia. Their experiences underscore the importance of specialised medical care, community-led fundraising, and the ongoing drive for research.

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A Spectacular $46,941 Raised! Thank You for Lending Your Muscle for FA!
A Spectacular $46,941 Raised! Thank You for Lending Your Muscle for FA!

An absolutely incredible final total! Lend Us Some Muscle™ 2025 has raised a spectacular $46,941.93 for Friedreich's Ataxia research in NZ! A massive, heartfelt thank you to our entire community. Read our final wrap-up and see how you can get involved next year...

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Incredible $30,731 Raised! Celebrate LUSM 2025 & Donate in These Final Days!
Incredible $30,731 Raised! Celebrate LUSM 2025 & Donate in These Final Days!

WOW! LUSM 2025 has raised an incredible $30,731.82 for FA research! A huge thank you to all our amazing fundraisers. There are still a few days left in May to donate and boost this fantastic total. Read more & support them here...

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Our Friends and Partners

We are proud to work with these organisations who help us in our mission.