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Join Fara NZ
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Friedreich’s Ataxia is a life shortening condition that affects a person’s coordination, mobility, speech and heart function. Your donation will help FARA NZ support the quality of life of people with FA, and assist the funding of scientific research to cure this rare neurological degenerative condition.
How can you help FARA NZ?
Please consider holding a fundraising event for FARA NZ. For information about this please email enquiries@fara.org.nz You can encourage your friends and families to donate to FARA NZ.
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Recent Posts
13th ANNUAL SCIENTIFIC SYMPOSIUM & OTHER ACTIVITIES
Thursday 25 October Patient Panel, Scientific Symposium Level 5, Murdoch Childrens Research Institute, Royal Children’s Hospital Melbourne 4-6pm Come along to the patient panel session of our annual fara Friedreich Ataxia Scientific Symposium. Held from 4-6pm, you will have the opportunity to hear presentations from Ron Bartek, President FARA (USA), Jennifer Farmer, Executive Director FARA (USA) and […]
Read MoreDeveloping resilience while living with a progressive condition.
Here is the presentation Chronic sorrow From grieving to gratitude from Dr Kirsty Ross, PhD Senior Clinical Psychologist Massey University. She has also attached some helpful handouts on 10-ways-to-develop-resilience Accepting Uncertainty Calming Technique Mindfulness and Letting go What is Mindfulness
Read MoreJoe’s video about a new incredible hearing device
If you would like to contact Joe for more information on this device you can email him at jboon77@gmail.com
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