Hi everyone, The link below informs you of the Information Day that is occurring on Saturday the 15th of July in Auckland next month. It’s an excellent opportunity to meet others and their family members in the same situation and listen to the experts that are so helpful and knowledgeable. 2017 fara Aus Auckland Invitation […]
A must watch In a recent video posted by Attitude, Joe explains the concept of Supported Living and how support workers enable him to get out there and take on the world. View video HERE
FARA NZ and Australia FARA are co-funding the Deverman research project. This research provides hope to NZ families and those throughout the world living with Friedreich Ataxia. We are grateful for the fundraising efforts of the FARA NZ community used to support this important research. Evaluating novel capsids engineered for efficient CNS transduction, as frataxin gene delivery vehicles Friedreich […]
Written by Denise Finch Dean and Glen Finch – Friedreich Ataxia Fundraising Event 18th June 2016. We started our fundraiser back in March. We are fortunate to have an Auntie and Uncle who own Milford Helicopters and we asked them if they would donate a flight as one of the major prizes in our raffle. […]
Hey everyone…watch this video here or on the homepage James Boon retraces Rocky Balboa’s famous steps climb in Philadelphia ‘Friedreich Ataxia’ style in 2016.
Yay…our website is finally up and running. We are excited to be able to now have a central point where we can support patients and their families with knowledge about Friedreich’s Ataxia.
